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The EDS Research Project

The EDS Research Project

The Ehlers-Danlos Syndrome Research Project

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Adults with EDS

Interviews

  • Megan Knowlton

  • Jess Kumi

  • First Email from Dr. J. I am a practicing nephrologist in Ohio and have 6 month old twins, a boy and a girl.  Nine weeks ago I noticed my daughter’s leg was externally rotated and swollen so I ordered an xray and she had a transverse fracture of her mid femur.  I then took her to a children’s hospital an […]

  • From a very young age, myself and others in my family were able to do a host of “parlor tricks”. Dislocation and subluxation of joints. We had the ability to extend beyond the norm, or watch as for mysterious reasons legs and feet turned purple and blue, or a host of other outside-the-norm issues ranging […]

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