The EDS Research Project
The Ehlers-Danlos Syndrome Research Project
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Sent: Thursday, December 06, 2018 9:51 PMTo: Holick, Michael F <mfholick@bu.edu>Subject: My 7 week granddaughter has 22 fractures Dear Dr Holick: Allow me to introduce myself. I am Nydia a grandmother on paternal side. I am 55 and work as a pharmaceutical rep for multiple sclerosis. I had read about you and when I found fractured families I was […]
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September 11th 2020 Medical Executive Committee Boston University Medical Center 80 E. Concord St. Boston, MA 02118 To whom may concern: I am N O, a Mother and a Grandmother. I am 56 years old and hold a BS in Medical Technology and a master’s in business administration. I worked in R&D for 11 years and in pharmaceutical […]
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Sent: Monday, July 01, 2019 9:51 AMSubject: The Kylie Family Good Morning, My name is Kylie.. We have three beautiful children and our newest addition Fynn, age 5.5 months old. He is the main reason we are emailing you, desperate for help. I need to give you so much background information on us and our family to help […]
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No one ever thinks that in their seasoned years as a parent, after three beautiful children, they would be fighting false child abuse allegations. Or worse yet, in jail during their child’s first Christmas and first birthday. But that’s exactly what happened to me. My name is Kylie and our third child was misdiagnosed with NAT (Non-Accidental […]
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Medical Executive CommitteeBoston University Medical Center80 E. Concord St.Boston, MA 02118 Dear committee members, I don’t believe that my son would be alive today without Dr. Holick. In March of 2018, my family was falsely accused of having abused our three month old son, Quincy. My husband was arrested and charged before the accusing doctor […]
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Hello. My name is Nicole. A few months ago my husband accidentally dropped our son and they found multiple fractures at different stages of healing. We have no idea how they got there and he never had any bug bruises or anything. His vitamin D levels are borderline. We live in MO and are pretty […]