I would like to bring to your attention the plight of families being falsely accused of child abuse due to the lack of awareness that vitamin D deficiency rickets and Ehlers-Danlos syndrome hypermobility type can cause fragility fractures. I have had more than 350 families contact me over the past decade asking for my help. A typical email is attached. I made every effort to see these families in my clinic. After a careful review of the medical histories and conducting thorough physical exams of the parents and their children I was able to find a likely cause for the fragility fractures. I have testified in numerous cases and many of them I helped the parents be reunited with their children. Unfortunately not all cases were resolved in favor of the parents.
As we celebrate this New Year with family and friends there are some families who will not be able to be with their children and some parents spending their time in prison due to what I believe is the most egregious, horrific medical scandal ever perpetrated by a segment of the medical community. I connected the dots and realized that a genetic disorder known as Ehlers-Danlos syndrome hypermobility type markedly increases risk of fractures in infants due to bone fragility. Although I have published 72 cases of infants whose parents were accused of child abuse and found that the fractures where due to either severe rickets or this bone fragility disorder the child abuse community has ignored my published scientific observations. Because I was so successful in helping families be reunited by testifying in the court system the child abuse doctors launched a campaign to get me terminated. They finally succeeded when I made the diagnosis of vitamin D deficiency in an infant based on a documented low vitamin D test (25-hydroxyvitamin D level).
I was recruited by Boston City Hospital in 1987 to not only become Chief of Endocrinology, Diabetes and Nutrition but also to establish and be the director of the Bone Health Clinic for infants, children and adults. In 1996 Boston City Hospital merged with University Hospital to become Boston Medical Center. I was asked to remain as Chief of Endocrinology, Diabetes and Nutrition and Director of the Bone Healthcare Clinic where I continued to see infants children and adults with various metabolic bone diseases. In 2017 Boston Medical Center informed me that because I was not a pediatrician I was no longer permitted to make any diagnoses in infants with metabolic bone disease. I felt obligated to inform parents based on the Hippocratic oath that I took and being recognized as one of the world’s leading experts in the field of pediatric and adult vitamin D that their child was vitamin D deficient and that this had significant health consequences to the skeleton requiring vitamin D treatment. I have filed a complaint against the hospital and I am now raising funds to help my defense. I have now launched a social media campaign to make the world aware of this unmitigated disaster where young families are being destroyed by having their infant instantly removed from their care and ultimately sent for adoption. Often one or both parents are also sent to prison for felony child abuse.
I would be grateful if you could help support my efforts to help these unfortunate families and also spread the word.