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The EDS Research Project

The EDS Research Project

The Ehlers-Danlos Syndrome Research Project

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What is Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome (EDS) is a group of hereditary connective tissue disorders caused by faulty or insufficient collagen and/or elastin. These disorders mainly affect the skin, bones, joints, blood-vessels, heart, nervous system and immune system among others.

Signs / Symptoms

  • Loose joints—causing joint dislocations and destruction
  • Poor blood pressure control, orthostatic hypotension and postural orthostatic tachycardia syndrome (POTS)
  • Fagility Fractures
  • Disc dislocations and destruction
  • Fragile, thin, elastic skin with atrophic scarring
  • Easy bruising due to capillary fragility
  • Click murmur syndrome and arrhythmias
  • Dysautonomia causing hypersensitivity to the surrounding environment
  • Regional pain and global chronic pain syndrome
  • Gastroparesis
  • Altered immune system
  • Vestibular balance abnormalities
  • Dental crowding
  • Temporomandibular joint problem

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